Hi everyone! I know It's been a while since I took part in Deviant community but i have my reasons. I realize that not many people read my journal, not many at all. The only one to blame is me.
I'm not going to write about what I've been up to since all I did was work, and it's good. Got meself some cash for the upcoming holidays.
From now on my journal is going to be about something a little different.
I thought to myself what good have I done to anyone but me?! And the answer did not suprize me. Fucking nothing.
I'm not seeking redemption, but there is something I can do to help one person who really, trully needs help.
Prologue. Don't bother reading if your not interested.
A few months ago my mother told me about an aerticle she read in a newspaper about a boy who's got Hunter Syndrome. I'll tell you all about that later. Long story short, my mum decided to help these people and their child. So did I. Except I made that decision today.
Chapter one: Live and let Live.
There is a little place in russia called Artemievskiy. It's a village-like town. In this town lives a fimily of three people.
One mum, one dad and one kid. Just an average kid like anybody else except this one has Hunter Syndrome.
Wiki source
Hunter syndrome, or mucopolysaccharidosis Type II, is a lysosomal storage disease caused by a deficient (or absent) enzyme, iduronate-2-sulfatase (I2S)
The visible signs and symptoms of Hunter syndrome (MPS II) in younger people are usually the first clues leading to a diagnosis. In general, the time of diagnosis usually occurs from about 2 to 4 years of age. Doctors may use laboratory tests to provide additional evidence that an MPS disorder is present, before making a definitive diagnosis by measuring the iduronate-2-sulfatase (I2S) enzyme activity. The most commonly used laboratory screening test for an MPS disorder is a urine test for GAG. It is important to note that the urine test for GAG can occasionally be normal and yet the child still may have an MPS disorder. A definitive diagnosis of Hunter syndrome is made by measuring I2S activity in serum, white blood cells, or fibroblasts from skin biopsy. In some people with Hunter syndrome, analysis of the I2S gene can determine clinical severity. Prenatal diagnosis is routinely available by measuring I2S enzymatic activity in amniotic fluid or in chorionic villus tissue.
Now you have an Idea of what hunter syndrome is. For more information visit wikipedia.org
Kids name is Arseniy Korelin, he's 3 years and 11 months old. you can look at his picture at my gallery.
He's mum and dad work their asses off to try and make a living. Both their salaries is approximetly 40 thousand roubles a month, which is about 1200$. It's just about enough to eat meat products once a week.
The kid is dying!
His treatment cost 4500 euro for a single injection, some amount they can not afford. Russian government doesn't have Hunter desease in a list of supported treatment or whatever it is called. In other words, they do not give a flying fuck about it.
In states, the same treatment cost 1000$ per single injection. Feel the difference?
My mother is trying to push the law to add that syndrome to the list. Which I believe is pointless. They are all Corrupt pigs, caring for themselves only.
I thought of another way to do things.
I'm making groups on every possible social network of the world, trying to attract people's attention to it.
So what I'm asking you is to spread the word, read my journal entries,add to to the watch and not click of my journal and make donations of any amount if possible.
In return I can send you a picture of this kid with a sheet of paper in his hands that says thank you in YOUR language.
As well as that I can say a standard human thank you.
For those who thinks It's a fraud, go fuck yourselves with something edgy!
I'll leave my paypal account details in the next entry.
For now, please spread the word, help, don't stay ingorant, make a difference in one person's life. Just Imagine how much love this kid will have, how much appreciation when he grows up, knowing that the whole world took part in his servival!
I believe it's of those thungs I can do, that'll leave a warm feeling in my heart for decades.
I truly hope you feel the same.
If you wish to contact me, please wright to remuera@mail.ru or call me: enter the outgoing international code, then 7964 521 5740. I'm on greenwitch timebelt.
Thank you kindly for reading this.
I'll be in touch
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